Earlier this year we brought you the heartbreaking story of Hunter girl, Aria Manderson, who was diagnosed with a deadly genetic disease – Spinal Muscular Atrophy Type One.
The now one-year-old recently suffered a cardiac arrest and was in a coma for several weeks, but is back home, and being cared for by her parents.
The family is in desperate need of donations to help fund Aria’s ongoing medical care, so she can become well enough to undergo a potentially life-saving stem cell treatment overseas.
A Family Fun Day fundraiser is scheduled for Sunday, at the Bellbird Hotel.
This story is both heartbreaking and inspirational. I hope that people get behind this beautiful baby and wonderful family. I live with SMA type 3 and understand how difficult it can be. I can’t wait to contribute and wish them all the luck, love and support in the world.