Central Coast News

CYSTIC FIBROSIS FUNDING URGENTLY NEEDED

The life expectancy for someone with cystic fibrosis is just 37 years old.

It’s a figure that haunts two mothers on the Central Coast – their teenage boys both live with the debilitating disease.

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3 Comments

  1. What wonderful Mums these ladies are – dedicated to their sons. Keep up the wonderful work you are doing ladies. It’s hard enough being a Mum with “normal” teenagers. Best wishes for continued good health for the boys.

  2. I saw this via the Cystic Fibrosis Facebook page. I have a brother and a sister with cystic fibrosis. My parents were told that neither of them would live to be 15. My brother is now 42 and my sister is 38. My sister had a double lung transplant in 2008 and is doing well. Fortunately my brother’s health has always been reasonable good. He has only had one hospitalisation at the age of 8 for cf. The progression in treatment and medicine for this disease since the early 70’s has been amazing but we need funding to find a cure. All the best to all parents and siblings who have a “cf’er” in their family.

  3. Good on the boys for helping! It is difficult to find a balance between appealing for help and maintaining the dignity of the CFers, and the boys were very brave. My son with CF is only 7 and of course we live in hope for a cure! In the meantime, I’ll keep doing the treatments just like the Mums in the story. I am very thankful for the people who have helped get the information about CF out there and for the people who help in every single way to support CF families and search for a cure.

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